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-------------------------------------------------------------------------------------- Boy Born Without A Brain, 6 Years Later Look At What Doctors Find Inside !
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[Music]
[Applause]
british boy born with two percent of his
brain celebrates ninth birthday when
noah wall was born with just two percent
of his brain due to a combination of
rare genetic disorders doctors told his
devastated parents that he'd never walk
talk or eat on his own
noah's odds of living past age one were
so slim his parents had chosen a coffin
and were already arranging his funeral
before he was even born
nine years later noah has grown eighty
percent of his brain and dreams of
becoming an astronaut
noah was diagnosed in the womb with
spina bifida a birth defect that occurs
when the spine and spinal cord
don't form properly causing the baby to
be paralyzed from the chest down
early brain scans showed that the baby
was missing most of its brain due to a
poor encephalic cyst in his head which
was destroying his brain
that's not all
doctors believe little noah has
developed edward syndrome and patau
syndrome
both very rare genetic disorders with
low odds of survival
edward syndrome also known as trisomy 18
is a genetic disorder caused by the
presence of a third copy of all or part
of chromosome 18
rather than just the two copies found in
a healthy person
only 13 in 100 babies born alive with
edward syndrome will live past their
first birthday
patau syndrome also called trisomy this
time the additional copy living in
chromosome 13.
only one in 10 children diagnosed with
this rare genetic disorder survived past
year one
shortly after the boy from cumbria uk
was born the baby made a life affirming
scream
it was incredible it was emotional said
mother michelle wall who works as a
full-time carer
that was the first surprise given that
doctors expected a stillborn
when doctors performed an mri scan they
were shocked to learn that noah was
actually born with just two percent of
his physical brain
due to a rare condition called
hydrocephalus which caused fluid to
accumulate on the brain
surely he'd lived the rest of his few
remaining days in a vegetative state
they all thought
but somehow
the brave boy made a miraculous recovery
recently he celebrated his ninth
birthday and he's doing fairly well
he reads does math and even loves
science according to his mother who
homeschooled him
and although he's wheelchair bound
little noah has been surfing and skiing
his meteoric recovery began seven weeks
after he was born when doctors fitted a
shunt into his head and a soft tube
through which excess fluid was drained
this made room for his brain to start
growing its missing parts and neurons
some doctors believe his brain was
actually squashed and later expanded
after room was made
unfortunately the brain spinal cord
connection was not regenerated so little
noah cannot walk but otherwise noah
seems to have developed into a fully
functional nine-year-old boy
which is almost a miracle considering
what he went
through it's astonishing to me how smart
he is
every single day he does something that
impresses me he's even started using
aftershave in preparation for puberty
said mother michelle
i'm so extremely proud of him he's my
son his goal in life is to run it's what
he wants to do
i'll help him all i can and always be
there for him
noah is a patron of variety an ngo that
works with disabled sick and
disadvantaged children as well as the
music man project which promotes
disabled children in britain's biggest
stages
follow noah on instagram
you