Meeting of the Advisory Council on Parkinson's Research, Care, and Services | 8.24.26 l Part 3
This is the second meeting of the Advisory Council on Parkinson's Research, Care, and Services (ACPRCS), which was established by the Dr. Emmanuel Bilirakis and Honorable Jennifer Wexton National Plan to End Parkinson's Act of 2024 (Pub. L. 118-66). The Advisory Council is charged with providing advice to the HHS Secretary on Parkinson's-related issues, including the creation of a national plan. The meeting will include presentations from non-profit
organizations focused on Parkinson's disease and related disorders (PDRD); plans for producing a federal inventory of
PDRD programs; and the Council Subcommittees will report out on their progress.
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Video Summary
AI GeneratedThe Research and Regulatory Program and Care Services and Supports subcommittees are collaborating on a national plan for Parkinson's disease to be submitted to the HHS Secretary and Congress. Using a shared framework centered on the patient experience, they aim to bridge gaps between research and care to transition from a fragmented system to a proactive, patient-centered model.