Wisconsin 10-month-old boy with rare disorder needs liver donor

His family is looking for a miracle. 10 month old Weston in Burlington has a rare disease and needs a liver transplant are receiving Kenosha County reported Ben Hanson sat down with Weston's family to talk about this difficult situation, but the hope they find in him nonetheless. Yes, very chatty today. Weston Hagen fills a room with smiles. And a lot of noise. At 10 months old, his family says he'll probably start walking before he crawls. Weston is my sister's miracle baby. It's a reminder for his godmother of how strong he is. It's, you know... Despite the battle, he's fighting. He has to wake up and it's hard for him to start his day and to end his day. He doesn't get to to play like other kids do or learn things like other people do. At six weeks old, Weston was diagnosed with Alagille syndrome, a rare genetic disorder that affects multiple organs, but mainly His liver. It has gotten severe enough that he needs a liver transplant to survive. Weston's days revolve around his disease, constant treatments, appointments, and challenges. I mean, if this doesn't show you how he strives and to let somebody know that he's trying every single day when he wakes up. To donate, Weston needs someone between 18 and 59 years old, weighs less than 122 pounds, with a BMI of less than 25, is A or O blood type. And lives in Wisconsin. A lot of people don't see the back stuff of him, maybe not sleeping at all of him of his worst days, but his resilience does not stop him. A new liver would allow him to start growing like a regular kid. Just imagine his energy if he was perfectly healthy. The room couldn't contain it. It gives us hope in Burlington. Ben Hanson, Fox six news.