Baby Is Born Without A Jaw And The Ability To Speak. 20 Years Later, He Reveals His Hidden Secret

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Baby Is Born Without A Jaw And The Ability To Speak. 20 Years Later, He Reveals His Hidden Secret
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It is estimated that 353,000 babies are born worldwide each day, which is about 255 births
every minute and about 4 babies every second.
Out of that number, 15 million babies are born premature and 120,000 babies are born
in the United States each year with some kind of birth defect.
Although the statistics can provide us with facts and data on the topic, it cannot help
us understand what those kids are struggling with.
What the parents are going through and how they are all coping with the difficulties
of everyday life.
One of those kids is Isaiah Acosta, a boy born without a jaw and the ability to breathe
or eat on his own.
But what he knew was that life had great things in store for this brave fellow.
This is his story.
Isaiah Acosta was born on the 31st of October, 1999 in Glendale, Arizona, USA.
He was born two months premature and due to that, he was fighting for his life.
Right after the birth, he was without oxygen for 15 minutes and doctors told his parents,
Tara and Sergio, that he was unlikely to survive and that if he did, he would not be able to
walk or talk and would be practically bedbound.
But the doctors did not know what kind of a fighter Isaiah was.
Isaiah also suffers from multiple unrelated disorders and medical conditions.
The most severe being agnathia, a very rare condition that is marked by the absence of
one or both jaws.
Isaiah was born without the lower jaw and respiratory pathways, so he is not able to
talk, breathe or eat on his own.
He breathes through a tracheal tube in his neck and eats through a tube in his stomach.
In addition to the previously mentioned conditions, Isaiah also suffers from a congenital condition
which practically means that all of his vital organs are reversed or mirrored from their
normal positions.
Despite the prognosis given by the doctors, Isaiah has beaten all the odds.
Although he cannot talk, he can walk, think and hear everything perfectly.
He did win the battle for survival, but he continues fighting for a better quality of
life every day.
Isaiah's life hasn't been easy for anyone, neither for his parents nor for him.
He is not a regular boy and he needs 24-7 care.
The tube he uses for breathing needs cleaning at least three times a day and it has to be
changed once a week.
Not to mention the danger of suffocating due to blockages and many other dangers he is
facing on a daily basis.
As a kid, it was unimaginable for him to go out and play with other kids without someone
constantly checking up on him.
When he wants to see a movie with his friends, his parents have to be in the theater.
If he wants to go to a concert, someone has to escort him and carry all his medical equipment
in case of an emergency.
He cannot stay in his room alone, listen to music, like all teens do, without his parents
coming in and checking up on him.
He was and he still is 100% dependent on his parents.
On the other hand, his parents tried, as much as they could, to provide their child with
Isaiah graduated from the Apollo High School and has recently enrolled in his town's community
college.
His parents did not want him to go to specialized schools dedicated to sign language because
he is not deaf.
He communicates through gestures, animated facial expressions, and by typing on his phone.
Tara and Sergio did everything they could so that Isaiah could at least feel normal.
Although they tried, his parents could not protect him or defend him completely from
the cruelty of this world, especially the kids at school.
It was obvious that he was different from the other kids.
He looked different, he behaved differently, and he even breathed differently.
So needless to say, he was the victim of a lot of pure bullying and harassment, but he
didn't allow it to get the better of him.
I am full of life and I am not letting anyone take that away from me, he said for the Untold
Miracles podcast.
Since the moment he was born, Phoenix Children's Hospital has been his second home.
He has gone through numerous surgeries and treatments for the past 20 years.
The PCH is a part of the parent organization, Children Miracle Network Hospitals, whose
aim is to raise money for the injured and ill kids as well as to raise funds for children's
hospitals, medical research, and community awareness of children's health issues.
Isaiah eventually became a volunteer at the hospital, helping other kids with similar
problems.
Having spent most of his life inside the walls of the hospital, he befriended many kids there
and he dedicated his life to helping them accept themselves for who they are and not
for whom the society wants them to be.
That's why, when offered a cosmetic jaw, he refused it because it wouldn't actually provide
a better quality of life, but only make him more appealing to our eyes.
It was not something he was willing to risk his life for.
From the very beginning of his life, it was more than obvious that he was like no other
child.
He has been destined for greatness.
At the age of five, he got interested in music, more precisely rap.
He started writing lyrics as a way of communicating his feelings and emotions.
His dream was to become a rapper.
He only had one problem, he couldn't speak.
However, that turned out not to be an issue for him.
In 2016, he attended a Children Miracle Network function in Washington, D.C. as an ambassador
for the Phoenix Children's Hospital.
Isaiah told some people at the event, via texting, that he would like to become a rapper.
And the Children Miracle Network producer, Topher Horman, saw no reason for Isaiah's
dream not to become a reality.
Horman asked a Phoenix rapper, Tyke Patterson, aka Trap House, to work closely with Isaiah,
rap his lyrics, and provide him with a physical voice.
They immediately hit it off the moment they met.
Trap treated Isaiah like any other person, accepted his differences, and appreciated
them.
Trap's voice became Isaiah's power, and he used it to deliver his messages through music.
They had so much fun working together that Isaiah would often forget that they were actually
working.
The first song they recorded together was Oxygen to Fly, released in 2017.
They also made a video for it that became viral almost instantly.
The song is autobiographical, telling Isaiah's story and his struggles to find the voice
while living with serious medical conditions.
Following the song becoming a huge hit, Trap and Isaiah started performing together in
Florida and California.
They were feeling on top of the world.
The next year, Isaiah and Trap released another song, Hate, is for the weak, about the harassment
and bullying Isaiah had been going through since going viral.
They really liked working together, and Isaiah appreciated the fact that Trap took him seriously.
The point of rap music is to give a voice to the voiceless, and Trap had the opportunity
to do exactly that, which for him was priceless.
His voice on the recording, Isaiah was the one picking the beat and picking the production
because Trap wanted the end result to be the way Isaiah had envisioned it to be.
I also loved what he'd written, and could tell immediately that he had talent.
It was an incredible experience to work with Isaiah and interpret his poetry to come across
as a rap song, Trap, said to People magazine.
The duo became a huge hit across America, and Isaiah was living the life he had once
only imagined.
In 2017, Isaiah was a panelist at the South by Southwest Music Festival in Austin, Texas,
and on his 18th birthday, he opened for one of the most famous independent rappers in
the world, Tech N9ne.
He performed in front of celebrities such as Nick Cannon and Marie Osmond, and opened
for other artists such as Rich the Kid and many more.
He was living the dream.
But life was preparing another blow for him.
The one he has been having a hard time recovering from.
In January 2019, his colleague and a beloved friend, Tykee Traphouse Patterson, died after
losing the battle against pancreatic cancer.
The roles became reversed, and now Isaiah was the one visiting his friend in the hospital.
Trap was suffering from pancreatitis before he was diagnosed with cancer in November 2018.
Isaiah was there for him the whole time, until his last breath.
He was right with him, holding his hand, Tara said.
Weeks after Trap's death, Isaiah said he still felt numb, and that he relied on his faith
to go through it all.
He is determined to keep Trap's legacy, continue their work, and share kindness.
Traphouse did tell me he didn't want me to stop.
He wanted me to keep going.
After all, he has come a long way to give it all up.
Trap and Isaiah recorded a third song, too, that has yet to be released.
In July 2019, Isaiah gave an interview for the Untold Miracles podcast with Kelly Davis.
He talked about the miraculous circumstances around his birth and the medical challenges,
and how he had overcome bullying.
He advised other kids facing the same hardships to talk to their parents and encouraged them
by saying they were not alone.
He raised awareness about children with disabilities by saying that he had a lot of friends with
serious, life-threatening conditions, and the only thing they wanted was to be treated
like everybody else.
He dedicated his whole life to helping others the way he can.
He feeds the homeless, provides for the needy, and gives his voice for the voiceless.
He might not be able to speak, but he has his words, and the whole world is listening.
Being who he is and spreading his words across the nation, Isaiah has come across many celebrities
who support and appreciate what he does.
His Instagram account has 115,000 followers, including celebrities such as Post Malone,
Nick Cannon, and Jennifer Lopez.
He once said he would like to cooperate with Post Malone and Travis Scott on his future
Like any other 20-year-old boy, he wishes to become independent, to go to college, to
drive a car, to live a normal life.
His parents are used to taking care of him, but now they've come to a point that they
need to let him go, at least a little.
He craves what any normal person wants, freedom.
The problem is that all his medical problems are still his reality, and he cannot run away
from that.
However, he is determined to start a new chapter of his life.
In January 2018, he posted a video on his Instagram account showing him changing his
own tracheal tube for the first time in his life.
In life, you have to overcome your fear.
Something I had to do for 2018, he wrote.
He wants to finish college, get a job, and continue being a part of the music world.
His family supports him no matter what and they will be there for him, as they have been
all this time.
Isaiah Acosta has served as an inspiration to all the people out there struggling and
fighting their own battles.
He is living proof that people can achieve anything in life if they really want it.
He loves life and he never gave up despite all the hardships and misery.
We all have a purpose and we have to learn to live and move on, even with pain, Isaiah
said.
People all around the world recognize him and they find motivation and strength in his
words and in his work.
That is his purpose and that is his why.
What is your why in life?
He wrote on Instagram, I'm here to say tomorrow is not promised or guaranteed.
My why is to change what the eyes see, save lives, give hope as long as I'm on earth.
We are very happy to continue following his life story on social networks and through
his songs.
He taught us a valuable lesson that anybody can live a dream, no matter what they are
going through and what they are struggling with in life.
And all we have to say is kudos for you, Isaiah.
And we wish you the world of happiness and a lot of luck in all your future endeavors.
